Category Archives: mom

Have you washed anyone’s feet this week?

Today is Maundy Thurs­day, the day on which Jesus’ Last Sup­per falls. I am still strug­gling with my lit­eral faith ver­sus my belief in the metaphors, my sup­port of the scrip­ture if not the insti­tu­tions, but one of the best parts of Easter, for me, is what hap­pens before the Last Sup­per. As the story is recounted in the Gospel of John, Christ washed all his dis­ci­ples’ feet, and coun­seled them that no one is so great that they need not serve oth­ers. To me, this defines every­thing that comes there­after– the self-sacrifice under­girds what He means when he says, take, eat, and take, drink, in remem­brance of Me. In remem­brance of what? That the great­est can wash the dusty feet of the least. That deniers and betray­ers are also wor­thy of for­give­ness and love. That death is worth life and for­give­ness for those surviving.

The church I grew up in was fairly con­ser­v­a­tive, in the old-fashioned sense– at least until my Mom joined. She and the min­is­ter were of like hearts, and he now had an ally to shake things up a bit. When I was 12, she spent a week mak­ing hum­mus, tab­bouleh, buy­ing pita and bal­ava, red wine, and roasted lamb. That Maundy Thurs­day, a small and skep­ti­cal group of the con­gre­ga­tion came for Sup­per. Mom and the min­is­ter, in their white robes and Lenten sashes and stoles, had dish­pans of hot water in front of five fold­ing chairs in the church base­ment. And as they herded the paris­hon­ers into these chairs, to have their feet washed, they took turns remind­ing peo­ple of the Passover cel­e­bra­tion that Chris­tians too often for­get, and remind­ing them that in Jesus’ day, peo­ple wore san­dals and walked on dirt roads, through streets with gut­ters instead of sew­ers. “And don’t for­get the lep­ers,” they both said, almost in uni­son. We kids were pick­ing at the olives and cru­dites as we watched more than one grouchy face soften and crum­ple, their eyes sus­pi­ciously sparkling. The first one to have his feet fin­ished just stood there, in his new-washed feet– I was half wor­ried I’d need to go find some tis­sues– when a homeless-looking older man walked in. “Is this the free sup­per?” “It is,” said the newly-washed one. “Would you like me to wash your feet? We’re hon­or­ing the Last Supper.”

There were maybe 25 of us that first year, between paris­hon­ers and the 7 folks who saw the sign at the com­mu­nity lunch­room. I have never felt such fel­low­ship among strangers– at least until the next year, when 65 peo­ple came for Last Sup­per. Even­tu­ally, Mom stopped mak­ing all the food her­self, and the cook­ing hap­pened in the church kitchen, but it became a part of the com­mu­nity, not just the church and the two more min­is­ters who suc­ceeded the first. It was some­thing they con­tin­ued even after my mother fell out with the new min­is­ter, and started going else­where. He didn’t want to do all this “hip­pie stuff.” The parish over­rode him that first year, and one of the Women’s Com­mit­tee called my mom to ask her if she would come back and offi­ci­ate. “We have 15 fold­ing chairs and 25 wash­ers already signed up.”

Whether you cel­e­brate Easter or merely rejoice to be alive, may you find someone’s feet to wash as spring reminds us of the peren­nial pos­si­bil­i­ties of a fresh start.

Wobbly weepy

I dis­con­tin­ued my Effexor Fri­day and started my (hope­fully final) 1500 mg. level of lithium dos­ing. No nau­sea side effects, but like clock­work I’ve started feel­ing weepy and volatile and shaky. Yes­ter­day it was argu­ing with the trans­porta­tion chief, the inpa­tient social worker, and finally, the head of social ser­vices at the hos­pi­tal where my mother stayed last week. See, to com­pound the almighty clus­ter­fuck that was her stay, the inpa­tient sw signed my mother up for trans­porta­tion, even though her address isn’t on the list of pickup areas. And he couldn’t check, because he didn’t do it until after the depart­ment had left for the day, and only after I left him a blast­ing voice mail–despite the fact that he’d known for 2 days that trans­port was needed.

I started shak­ing yes­ter­day with nau­sea and rage when my brother called me. My mother’d got­ten up at 5:15 and was ready at 7. No van, how­ever. She tried call­ing, but she’s not yet with it enough to really get what they’re telling her. (Funny, the col­li­sion of instinct and insight.) So then she called Brother, who called me. He was at the end of his rope. So I called and got the trans­porta­tion man­ager. He said he’d talk to the inpa­tient sw and some­one would call me back in 15 min­utes. An hour later I called the trans­porta­tion man­ager back, furi­ouser and furi­ouser. Well, of course he’d spo­ken with the f*ing moron I told him not to bother with, since I’ve appar­ently scared the use­less shit so much he won’t return a call to me. (and no, I never swore once out loud to any­one…) So I told the trans­porta­tion man­ager that I wanted the head of social ser­vices. More resis­tance. I said “look, I know you’re just telling me the facts and the mess up isn’t your fault, but you can get me the head of social ser­vices or I will just fax the Risk Manager.”

I’ll put you right through.” I thought so.

I got her voice mail. My voice was trem­bling with rage and exhaus­tion. If I didn’t get this started toward a solu­tion, I don’t know what I’dve done. I didn’t men­tion the Risk Man­ager. She called me back in 15 min­utes. I explained the sit­u­a­tion, my voice still sound­ing shaky and teary as I explained the fuck­ing idiocy of this inpa­tient social worker. (Again, I didn’t swear, but I used the words “shocked,” “con­cerned,” “extremely wor­ried” and “pre­cip­i­tate a relapse.”) “He never called you back?!?” “I hope he’s new,” I told her. I then held for 5 min­utes while she grabbed my mother’s paper file. “I see a list of ‘social work goals’ signed by Brother here. Did any of this get done?” “No. No case­worker. No med­ica­tion man­age­ment. No SSDI appli­ca­tion guid­ance. Nothing.”

She was appro­pri­ately apolo­getic. There isn’t much they can do for get­ting her to their day pro­gram, since she’s not yet fit to drive, and she really is out of their pick-up area. But she took all the infor­ma­tion we’d col­lected about whom we’d spo­ken with, try­ing to get set up, and said she would fol­low up with the agen­cies, includ­ing a case­worker refer­ral. She is also going to refer Mom to a more local day pro­gram, and will con­firm transportation.

Finally, some­one with a brain. Only took a week. A nasty let­ter to the Risk Man­ager may still be in order, how­ever. But we’ll see what the rest of the week holds.

After I got off the phone, I threw up. And then shook for about a half an hour. And then went to the Trader Joe’s for gro­ceries and some med­i­c­i­nal wine. On the way home, a dis­abled vet, pan­han­dling at an inter­sec­tion, caught my eye. He could be renamed Mr. PTSD, the dis­may on his face was so appar­ent. We’ve recently not had any cash, but I got paid last week. Five dol­lars to him was worth left­overs for lunch all week– hell, I have left­overs. I snif­fled and snor­fled the rest of the drive, thank­ful for Home. Once inside, I was freez­ing, shak­ing cold– so I crawled into bed for an hour, until the BH came home and made me sup­per. I can’t say that the two glasses of med­i­c­i­nal mer­lot were a cure, but they did make me stop shak­ing so hard. After fur­ther agi­ta­tion, an ati­van sent me off to sleepy-time. Today, since the project I am work­ing on is fraught with data­base cor­rup­tion, I got to sleep until 10. It’s going to be a lazy tak­ing care of myself day.

I can’t imag­ine how peo­ple who don’t under­stand the basic work­ings of the sys­tem do it. I could do all of this stuff myself, if I were there, and I’m still a wreck.

An unscientific poll for bipolars

My mom is out of the hos­pi­tal and home again, start­ing a partial-hospitalization pro­gram three days a week at the same facil­ity.  She’s not 100%, not even 90%, but she knew today to call main­te­nance because the toi­let was over­flow­ing.  She’s still grandiose, her insight is still impaired, but Brother put the fear of Boston into her, so for now she seems coop­er­a­tive.  Fin­gers crossed.

But, a ques­tion for my bipo­lar read­ers (and any­one else tak­ing psy­chi­atric meds, who thinks it’s applicable)–

Has it been your expe­ri­ence that when your meds are work­ing just right that you get a full night’s sleep, with­out the need for tranks like ati­van et als?  No anx­i­ety dreams, fall right back asleep after the 2 am pee break, no trou­ble wak­ing in the morn­ing, and for me at least, weird-but-fun-dreams.

That’s been my expe­ri­ence, and my way of con­firm­ing that I’ve come back to an equi­lib­rium.  My mother still needs tranks even with a week of full dosage lam­ic­tal + abil­ify under her belt, which seems to say to me that it’s just not the right drug com­bi­na­tion.  (Oh, the open­ing the door naked to the handy­man thing is a sign too…)

What’s your expe­ri­ence?  Com­ments and/or emails to bipolarlawyercook@gmail.com are much welcomed.

What is the sound of one lawyer raging?

The sound of one lawyer, rag­ing, is the tippity-typety of my fin­gers tak­ing out my ire at incom­pe­tent social work­ers and inad­e­quate men­tal health hos­pi­tals by doc­u­ment­ing their idiocy and plan­ning a com­plaint to the state licens­ing board.

It is also the sound of fin­gers quickly dial­ing tele­phone num­bers, and leav­ing mes­sages that start off like this, and go down­hill from there:

This is Bipo­lar­Lawyer­Cook, Mom’s Daugh­ter, and sis­ter to Brother, with whom you’ve been deal­ing this week dur­ing Mother’s hos­pi­tal­iza­tion.  I am also my mother’s lawyer.  I would like a return call, in order to dis­cuss why your social worker has not started paper­work for SSDI eli­gi­bil­ity on the basis of her bipo­lar; has not learned the name of the social worker who also works at your facil­ity who runs the day pro­gram she’s sup­posed to attend next week; has not called any of the medicare-accepting home health agen­cies to arrange for med­ica­tion man­age­ment, when that was what landed her in your facil­ity in the first place, and has only given my brother a list of num­bers to call.  I also want to know why your Psy­chi­a­trist is main­tain­ing her cur­rent med­ica­tion reg­i­men, when she has had four manic break­throughs with psy­chotic and delu­sional fea­tures on that regimen.”

Hon­estly, the phone book is more help­ful than their social worker.  And of course they all gave my brother the runaround, despite the pres­ence of autho­riza­tions from my Mom for them to talk to him about her care on file.  So instead, she’s being dis­charged, with­out her meds being changed (includ­ing, oh, say, a mood sta­bi­lizer that actu­ally con­trols mania, like Lam­ic­tal DOESN’T), with­out her fully sta­bi­liz­ing, with­out a ther­a­pist in place, with­out a fol­low up appoint­ment to her shrink sched­uled, and with­out a med­ica­tion man­age­ment plan in place, despite the fact that it was her lack of ade­quate med­ica­tion and her sub­se­quent mood ele­va­tion, lead­ing to non­com­pli­ance, that put her there in the first place!

You try to give peo­ple the oppor­tu­nity to do the right thing, and they f*ck it up, because she’s not vio­lently crazy and there­fore too com­plex to try to man­age.  (What?  Ther­apy?  You mean you can’t just sedate the liv­ing shit out of the cra­zies?)  And then they backpedal and hem and haw when they find out the patient is related to a lawyer, and they’re sud­denly will­ing to try all the things that I know are just stan­dard of care, not extrao­d­i­nary care.  The sound of one lawyer rag­ing?  It’s me, low­er­ing the bitch ham­mer.  Hard.  They won’t know what hit them.

Just as well I am not there, phys­i­cally.  I’dve been arrested for assault and bat­tery by now.  Attempted, my ass.  I want to stran­gle the assholes.

This week’s RealMental post

This week’s post, “Dear Mom,” is up.  This is for all the care­tak­ers out there.